Privacy notice for the National Epidermolysis Bullosa Dressing Scheme – health care professionals

Find out how we manage any personal information we collect about you when you apply for approval as a health care professional (HCP) under the National Epidermolysis Bullosa Dressing Scheme (NEBDS) and when your patient applies for the NEBDS.

When this privacy notice applies

This privacy notice applies when you complete either the health care professional application form or the patient application form for the National Epidermolysis Bullosa Dressing Scheme (NEBDS).

This notice explains how the NEBDS administrator (on behalf of the Australian Government Department of Health and Aged Care) manages personal information consistent with our obligations under the Privacy Act 1988 and the Australian Privacy Principles (APPs).

Information we collect

We collect personal information about your:

  • name
  • provider number
  • qualifications/specialisation
  • workplace and work address
  • work contact details
  • signature

Why we collect this information

We need this information to determine if you are eligible for HCP approval or if your patient is eligible for the scheme. To be eligible, an approved specialist HCP must refer the patient.  

If you do not provide your personal information:

  • we may not have the necessary information to make a decision on your application to become a HCP under the scheme
  • we may be unable to determine your patient’s eligibility for the scheme

How we collect this information

We collect personal information directly from you, via the healthcare professional application form and via the patient application form for the scheme.

Who we disclose your personal information to

We may disclose your information to:

  • anyone you’ve agreed we can share with
  • anyone the law requires us to share with

We are unlikely to disclose your personal information to overseas recipients.

How we store your information

The NEBDS administrator will store your information electronically in secure databases. If we are required to keep hard copy documents, they are stored in secure filing systems. Only authorised NEBDS administrator staff have access to your personal information. When we no longer need it, or when required by law, we will destroy or de-identify your information.

How you can access or correct your information

You can contact the NEBDS administrator to access your personal information and correct it if it is wrong. Their privacy policy includes more information about this process.

Concerns and complaints

The Department of Health and Aged Care’s privacy policy contains information about how you can make a complaint if you think we have breached:

  • the Australian Privacy Principles, or
  • the Australian Government Agencies Privacy Code

The privacy policy also explains how we will manage your complaint.

More on privacy

For more information see:


National Epidermolysis Bullosa Dressing Scheme administrator

Contact the National Epidermolysis Bullosa Dressing Scheme (NEBDS) administrator for help with the costs of epidermolysis bullosa (EB) treatment.
General enquiries
General enquiries
Privacy officer

Departmental privacy enquiries

Contact to find out more about privacy within the department, or to make a privacy enquiry or complaint.
Privacy officer:
Date last updated:

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