Privacy notice for the Inborn Errors of Metabolism program – healthcare professionals
Find out how we manage any personal information we collect about you when you apply for registration as an approved metabolic specialist under the Inborn Errors of Metabolism (IEM) program, or when your patient or their guardian applies for an IEM grant.
This notice explains how we (the Australian Government Department of Health) manage personal information consistent with our obligations under the Privacy Act 1988 and the Australian Privacy Principles (APPs).
What information will we collect?
We collect personal information about your:
- provider number
- workplace and work address
- work contact details
Why do we collect this information?
We need this information to:
- assess your application to register as an approved Metabolic Specialist under the IEM program
- provide your work contact details to patients under the IEM program (if your application is successful)
If you do not provide your personal information, we may not be able to approve your application.
How do we collect this information?
We collect personal information directly from you, via the application form.
Who will we disclose your personal information to?
We may disclose your information to:
- the Australasian Society for Inborn Errors of Metabolism (ASIEM) to help assess this application
- anyone you’ve agreed we can share with
- anyone the law requires us to share with
If we approve your application, we will disclose your work contact details to patients registered with the IEM program. Work contact details includes name, address, phone number and email.
We are unlikely to disclose your personal information to overseas recipients.
How will we store your information?
We will store your information on electronic media, including our Electronic Document and Records Management System and cloud computing solutions. We also store personal information on paper files. Only authorised Health staff or contractors have access to your personal information. When we no longer need it, or when required by law, we will destroy or de-identify your information.
How do we handle sensitive information?
We do not collect sensitive information about you via this form.
How can you access or correct the personal information we store about you?
Concerns or complaints?
- the Australian Privacy Principles, or
- the Australian Government Agencies Privacy Code
Departmental privacy enquiries
Contact to find out more about privacy within the Department, or to make a privacy enquiry or complaint