National Cancer Screening Register – privacy impact assessment

This report looked at privacy issues relating to the National Cancer Screening Register. It contains 28 recommendations for the department.


National Cancer Screening Register – privacy impact assessment

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The National Cancer Screening Register collects personal information about people who take part in the National Bowel Cancer Screening Program or the National Cervical Screening Program. This information is used to send reminders when people are due for screening and to track use and outcomes of the programs.

In 2016, the Department of Health asked consultants Clayton Utz to do a privacy impact assessment. The assessment looked at:

  • how personal information is collected, used and shared in the register
  • the impacts of the register on personal privacy
  • options for managing, reducing or removing those impacts

This report has 28 recommendations for the department about:

  • privacy policy, governance and management
  • data access and release
  • system security and access controls
  • data migration and cleansing strategies
  • training and policy communication
  • rules made under the National Cancer Screening Register Act
  • My Health Record access
  • communication with individuals, including Aboriginal and Torres Strait Islander peoples

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