What we’re doing about endometriosis

Endometriosis is a painful chronic condition. In Australia it affects at least one in 7 girls and women and those assigned female at birth. Individuals with endometriosis may experience a variety of symptoms. Find out what we’re doing to help those living with endometriosis.

About endometriosis

Endometriosis is a chronic condition that can be hard to diagnose and painful. Endometriosis occurs when some of the tissue similar to the lining of the uterus (womb), called the endometrium, grows outside of the uterus.

Some symptoms of endometriosis can include:

  • abdominal pain
  • heavy periods
  • bleeding from the bladder or bowel
  • feeling bloated
  • tiredness
  • anxiety or depression related to the pain
  • infertility

Endometriosis is a chronic condition that can start at puberty and continue through to old age. It can be painful and debilitating but there are effective treatments that may relieve the symptoms of endometriosis. 

For more information on tips to self-manage the symptoms of endometriosis and other chronic pelvic pain conditions, visit the following organisations that are receiving funding contributions from the government:

For more information about endometriosis see healthdirect.

What we are doing about endometriosis

We are addressing endometriosis at a national level via our National Action Plan for Endometriosis.

Since the release of the National Action Plan for Endometriosis in July 2018, around $127 million has been committed for a range of initiatives in:

  • research
  • awareness and education
  • clinical management and care

Through the 2025-26 Budget, the Government is investing $792.9 million in a women’s health package to:

  • increase the capacity of the primary care workforce to support women’s health needs
  • increase access to services 
  • make both services and medicines more affordable. 

This package includes funding to establish, extend and expand the scope of 33 Endometriosis and Pelvic Pain Clinics (EPPC). Funding for the EPPCs was further increased via the 2026-27 Budget, bringing the total investment to $39.9 million.

The expansion will support more clinics to:

  • provide multidisciplinary care
  • enhance support for endometriosis and pelvic pain across Australia
  • improve pathways to and the timeliness of diagnosis of endometriosis and other chronic pelvic pain related conditions
  • promote early access to intervention, care and treatment options for endometriosis, pelvic pain, perimenopause and menopause.
  • provide care and support for patients with symptoms associated with menopause, including throughout the menopause transition (perimenopause) and post-menopause.

More information on the expansion of the clinics can be found in the media release from Minister Butler. Learn more about these clinics.

More support for women with endometriosis 

More measures to help women to find appropriate care and better manage the impact of endometriosis and pelvic pain are listed below.

Support for former patients of Dr Simon Gordon

On 2 April 2026, the Commonwealth Government announced a $7.45 million package to support women who raised serious concerns regarding the care they received by the former gynaecologist operating in Victoria. Read Minister Butler's media release for more information.

This package includes: 

  • $1.5 million to fund Victorian Primary Health Networks (PHNs) to provide Endometriosis and Pelvic Pain (EPP) Care Navigator services. EPP Care Navigators will act as a single point of contact to make navigating the health system easier and will provide individualised support to help women:
    • access specialist reviews
    • arrange follow up care
    • connect with appropriate health and wellbeing services
  • Women can access further information about EPP Care Navigators on Eastern Melbourne PHN’s website.
  • $5.95 million for the Royal Australian College of General Practitioners (RACGP) and the Royal Australian and New Zealand College of Obstetricians and Gynaecologists (RANZCOG) to provide capability uplift to a wide range of health professionals across primary, specialist and allied health. 

Endometriosis guideline, management plan and support for priority populations

  • $0.8 million to the Royal Australian and New Zealand College of Obstetricians and Gynaecologists (RANZCOG) to develop the Australian Living Evidence Guideline: Endometriosis. This Guideline is a clinical resource that provides the latest scientific evidence to assist the diagnosis and management of endometriosis
  • $5.1 million for the development and implementation of an Endometriosis Management Plan to support the navigation and management of endometriosis and chronic pelvic pain for providers and their patients in primary care
  • $2.0 million investment to increasing awareness of endometriosis in priority populations. This includes:
    • a Mentor Program to support those newly diagnosed with endometriosis
    • a Workplace Assistance Program to facilitate discussions in the workplace
  • $1.9 million for continued support for the EndoZone digital platform to provide consumer access to evidence-based information

Research

MBS

  • access to four MBS items to support extended consultations of 45 minutes or more with gynaecologists for patients with complex needs such as endometriosis. More information on these items can be found on the MBS website
  • access to a Medicare-funded magnetic resonance imaging (MRI) scan to assist in the investigation of infertility for those with severe endometriosis and other conditions
  • access to a new Medicare Benefits Schedule (MBS) item for pelvic ultrasound, to support diagnosis of complex gynaecological conditions such as endometriosis, adenomyosis and pelvic floor dysfunction
  • expansion of MBS bulk billing incentives for all Medicare-eligible patients.

PBS

  • addition of two new medicines for the treatment of endometriosis to the PBS, Dienogest, and Relugolix with estradiol and with norethisterone. More information on the new medications can be found on the Medicines Status Website.

Learn more about these measures in our progress report.  See more chronic conditions resources.

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