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National Strategic Action Plan for Rare Diseases

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Publication date: 
26 February 2020
Last updated: 
27 February 2020
Publication type: 
Strategy or framework
Intended audience: 
General public

The National Strategic Action Plan for Rare Diseases is the first nationally coordinated effort to address rare diseases in Australia. Rare diseases are complex but share countless commonalities. This action plan addresses this common ground. It outlines a comprehensive, collaborative and evidence-based approach built on 3 principles:

  • person-centred
  • equity of access
  • sustainable systems and workforce