National Occupational Respiratory Disease Registry

The National Occupational Respiratory Disease Registry stores data on occupational respiratory diseases in Australia. It will help to reduce, eliminate, and improve our understanding of preventable occupational respiratory diseases.

About the registry

Learn about the registry and why it is important.

Access the registry

Log in to the registry to report or review data on occupational respiratory diseases in Australia.

Occupational respiratory diseases

Learn about prescribed and non-prescribed occupational respiratory diseases.

Governance

Find out who can access and report data to the registry.

Browse information for

Patients

Find out when your physician must report to the registry and what information you need to provide.

Physicians

Learn about physician reporting requirements, what occupational respiratory diseases to report, and how to report them.

Government agencies

Find out how to apply for registry data access as a state or territory government agency.

How to make a notification to the registry

Watch this video for more information about the process for making a notification to the national registry.

3:26

Making a Notification to the Registry

Welcome to the National Occupational Respiratory Disease Registry, a tool that stores data about occupational respiratory diseases in Australia. 

The Registry is now accepting notifications.

Physicians can use the Registry to report occupational respiratory diseases.

Who can make these notifications? Only specialised physicians may notify the Registry.

These specialties include occupational and environmental medicine or respiratory and sleep medicine.

It’s important to be aware of your reporting obligations. 

Physicians must report prescribed occupational respiratory diseases to the Registry.

While not mandatory, non-prescribed occupational respiratory diseases can also be reported with patient consent. 

Silicosis is the only prescribed disease for all states and territories.

Additional diseases that require notification vary depending on which jurisdiction you practice in. Access the department’s website to confirm your notifying obligations.

If you’ve made a diagnosis of silicosis for your patient, Alex Smith, you’ll need to make a notification. Let’s go through the steps you’d take to make a notification in the portal.

Log in to the portal with your Standard or Strong myGOVID. 

To notify a new patient, first you need to identify the patient by entering either their Medicare card number, DVA number or IHI number. After you’ve entered the patient’s identifying information, select ‘next’. 

On the Patient details screen that follows, you’ll enter the patient’s demographic and contact information. 

Please note that all fields marked with an asterisk are mandatory.

When finished, select ‘Save and next’.

Then, you'll be taken to the Disease and exposure details screen. Here, you can enter values from lung function tests and upload the associated files if available. 

To add the patient’s respiratory disease and exposure details, select the ‘Add respiratory disease’ button. 

Be aware that all fields in the respiratory disease and exposure details window are mandatory fields, and you won’t be able to save partially completed responses.  
To save your entry once complete, select ‘Save disease details.’

Once you’ve saved the disease and exposure details, you’ll have entered the minimum information required to make a notification to the Registry. 

Select ‘Save and next’ to navigate to the additional information screen.

Including additional information is optional and requires the patient’s consent. 

After you’ve entered any additional information you wish to provide, select ‘Save and next.’

On the Submit notification page, you can choose to submit a notification if all required information is complete, or you can choose to save a notification as a draft if you need to come back and complete it. 

Thank you for taking the time to learn how to make notifications to the National Registry. 

For more information about the National Registry, visit the department’s website. 

You can also contact the National Registry help desk with any queries you may have about using the portal.

Latest resources

Latest resources

National Occupational Respiratory Disease Registry brochure

This brochure contains key information regarding the National Registry, including types of data collected, purpose of the National Registry, physician obligations, and contact details for the physician help desk. This brochure contains links to the National Registry website and the Physician Portal.

National Occupational Respiratory Disease Registry postcard

This postcard provides basic information on the National Registry such as the National Registry’s purpose, mandatory and voluntary notifications, and a link to the National Registry website for further information.

National Occupational Respiratory Disease Registry – Annual Report 2024

The 2024 Annual Report gives an overview of the National Registry and summarises information notified to the National Registry in the first three months of operation and general observations. This Annual Report includes data on mandatory and voluntary notifications, exposure, occupation.

Contacts

National Occupational Respiratory Disease Registry contact

Contact us for more information about the National Occupational Respiratory Disease Registry.
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