Date published: 
14 February 2019
Media type: 
Media release
Audience: 
General public

The Liberal National Government will establish the HeartKids Project with $26 million to tackle childhood heart disease, which affects more than 65,000 Australians.

Today, on international day for congenital heart disease, our Government will provide $20 million for medical research into congenital heart disease.

This funding from the Medical Research Future Fund will support our best and brightest researchers to translate their vital work into real health benefits – better diagnosis, treatment and prevention of congenital heart disease.

The funding is for an open grant round aimed at better understanding the disease’s genetic causes and prevention and treatment options.

Unlike other cardiovascular problems, which commonly present in adults over 45 years, congenital heart disease has its greatest impact on the young.

Congenital heart disease is the leading cause of deaths for Australian infants and the second leading cause of death for children.

Sadly, eight babies are born with congenital heart disease every day, with four passing away each week. There is currently no known cure.

In Australia, of the approximately 300,000 births each year, 2,400 to 3,000 babies are born with a form of congenital heart disease.

For the first time, there are now more adults than children living with congenital heart disease – and this large and growing population requires lifelong and highly specialised medical care.

Our Government will also provide up to $6 million to help implement the recommendations of the National Strategic Action Plan for Childhood Heart Disease by supporting HeartKids with $1 million per year over six years.

We announced the National Strategic Action Plan for Childhood Heart Disease a year ago along with $150,000 for the organisation HeartKids to jointly developed the plan.

The Action Plan will guide improvements for the care of thousands of patients, and save lives.

It will coordinate policy action for tackling the disease across the nation and drive collaboration in management, care and support, research and community awareness.

The Action Plan targets three priority populations that are disproportionally affected by childhood heart disease — Aboriginal and Torres Strait Islander people, adolescents and young adults who are moving from paediatric to adult cardiac health services and people living in remote, or rural and regional locations.

HeartKids’ role in progressing the Action Plan’s recommendations will include addressing the standards of care for people impacted by childhood heart disease and increasing the availability of quality, relevant information about childhood heart disease.

A particular focus will be to help young people impacted by childhood heart disease as they move into adulthood.

We are committed to doing more to support people battling this dreadful disease – and the HeartKids Project will help us chart the most effective way forward.

Since 2013, the Coalition has provided $662 million for research into forms of cardiovascular disease including $45.7 million for congenital heart disease research.

We have also provided $7.7 billion to subsidise medicine to treat cardiovascular disease on the Pharmaceutical Benefits Scheme (PBS).

Ministers: