Learning Health System Strategic Advisory Committee

The Learning Health System Strategic Advisory Committee advises on the use of health data held in the My Health Record system for research and public health.

Role

The Learning Health System Strategic Advisory Committee is a temporary forum set up to give strategic advice to the Department of Health, Disability and Ageing and its key delivery partners, the:

  • Australian Digital Health Agency (ADHA), who manage the My Health Record system
  • Australian Institute of Health and Welfare (AIHW), who are the custodians of My Health Record data.

The committee’s advice will help build trust in a system that uses health data to improve care. This system learns from everyday clinical data to find ways to improve patient outcomes and make health care more efficient and sustainable. We call this a Learning Health System.

At first, the committee will focus on how health data from the My Health Record System can be used for research and public benefit. It may also look at how other health data sets could be used.

The department and its partners will use the committee’s advice to:

  • create strong rules for how health data from My Health Record is used in research and public health
  • guide discussions with people and organisations affected by these changes.

Advice from the committee will also help shape a proposal to the Australian Government for approval and funding of the program.

Members

Professor Mark Taylor has been appointed as the chair of the committee. He is recognised in Australia and overseas as an expert in health data governance. He is committed to building trust in using My Health Record data for research and public benefit through being collaborative and openly sharing the advice and ideas of the committee as it considers a range of topics.

MemberBackground and experience
Professor Mark TaylorChair
Kayla JordanAssistant Secretary Department of Health, Disability and Ageing
Mike LauChief Data and Analytics Officer, Australian Digital Health Agency
Michael FrostGroup Head, Australian Institute of Health and Welfare
Jacob MaddenExpert in emergency and health crisis data needs
Professor Marcia LangtonExpert in First Nations Data Governance
Associate Professor. Kristen SmithFirst Nations Data Governance
Ainslie CahillExpert in consumer advocacy
Professor Dougie BoyleExpert in health research and data
Professor Emily BanksExpert in health research and epidemiology
Emeritus Professor Gillian TriggsExpert in Privacy/Privacy advocate
Gaby CarneyExpert Data Privacy and AI Governance
Dr Adrian BurtonExpert in health data and researcher perspectives

Meetings

The committee plans to meet every 2 months.

Communiques

We will publish key meeting discussion and findings of the committee when available.

Contact

Use of Health Data for Research and Public Health Program

Contact the secretariat for more information about the use of health data for research and public health, or the Learning Health System Strategic Advisory Committee.
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