Privacy notice for the Inborn Errors of Metabolism program – patients
Find out how we manage any personal information we collect about you when you apply for funding under the Inborn Errors of Metabolism program.
This notice explains how we (the Australian Government Department of Health) manage personal information consistent with our obligations under the Privacy Act 1988 and the Australian Privacy Principles (APPs).
What information will we collect?
We collect personal information about your (or your child’s):
- contact details
- banking details
- date of birth
- Medicare number
- relationship to the person with IEM and any relevant custody arrangements
Why do we collect this information?
We need this information to:
- determine if you are (or your child is) eligible to receive financial assistance under the program
- administer the payments to you
If you do not provide your personal information, we cannot decide if you are (or your child is) eligible or pay you.
How do we collect this information?
We collect personal information directly from you, via the application form.
We will also collect your personal information from your approved metabolic specialist, via the same application form.
Who will we disclose your personal information to?
We may disclose your information to:
- the Department of Human Services, to confirm your Australian residency and Medicare enrolment status
- anyone you’ve agreed we can share with
- anyone the law requires us to share with
We are unlikely to disclose your personal information to overseas recipients.
How will we store your information?
We will store your information on electronic media, including our Electronic Document and Records Management System and cloud computing solutions. We also store personal information on paper files. Only authorised Health staff or contractors have access to your personal information. When we no longer need it, or when required by law, we will destroy or de-identify your information.
How do we handle sensitive information?
By submitting the application form, you agree to us collecting health information about you (or your child).
We will use it as stated in ‘Why do we collect this information?’
How can you access or correct the personal information we store about you?
Concerns or complaints?
- the Australian Privacy Principles, or
- the Australian Government Agencies Privacy Code
Departmental privacy enquiries
Contact to find out more about privacy within the Department, or to make a privacy enquiry or complaint