As was the case in 2010, the NADC Board was approached in late 2011 and a sub-committee was nominated and formed to meet by Teleconference and formulate the data set, ie the data items to be collected. Members were Jeff Flack [Chair], Trisha Dunning, Gloria Kilmartin and Pamela Jones.
Any data items selected would use current, agreed, preferably national definitions [if in existence], or original NDOW [National Diabetes Outcomes Workshop], (now METeOR6) Dataset definitions. Any data item collected would need to be able to provide relevant information for the Centre about its patients with a view to instituting change for identified ‘problems’. These data items and their definitions would be widely discussed and consensus reached where necessary before implementation. The ANDIAB2 2005 dataset was placed on the ADEA Website and feedback sought, and incorporated where possible. This was not done for ANDIAB2 2010 or 2012.
In choosing data items, most of the Data Fields collected in 2005 were again collected in 2010, in part to ensure the ability for some comparison, and indeed, sites that participated then will have data from that initiative plus their 2010 & 2012 data included in their Site report. For 2012 however, since nothing was done to address deficiencies found in 2005 and confirmed in 2010 in regards to carrying identification, carrying hypoglycaemia treatment (if relevant), or informing the Traffic Authority (if a Driver), there seemed little point in collecting these data again, so the fields were removed. New data items for 2012 were more items seeking information on smoking cessation, diet adherence and medication compliance.
A separate version of the ANDIAB Database was created and converted to accept the data items to be collected, and Teleform Software was utilised to create a scannable form for use in data collection [See Appendix 1]. Definitions for each data field were agreed and provided to participants [See Appendix 2].
The NADC Secretariat coordinated the project, which was conducted in a ‘double blind’ fashion. Diabetes Centres were invited to complete the one-page data collection form during the months of April, May (or June) 2010. Centres who wished to participate, responded to a formal invitation distributed by the NADC Secretariat to all Diabetes Centre members of the NADC across Australia. All subsequent contact and correspondence with participants was conducted through the Secretariat. In 2012 the Secretariat function moved from the ADEA Office in Canberra to the ADS Office in Sydney and this move took 9 weeks, causing an over 3 month gap between distributing invitations to participate and being able to distribute papers to enable sites to commence.
The Secretariat allocated a unique code to each Diabetes Centre using the predetermined ANDIAB proforma, and holds the only copy of the code. Centres who had participated in ANDIAB previously used the code already allocated to them. The Central Data Analysis Site generated .pdf electronic ‘Master Copies’ of forms uniquely numbered for each Centre, and sent them to the NADC Secretariat where a copy was forwarded to each participating Centre with printing instructions. Using de-identified data via this methodology, it is not possible for the Benchmarking Centre – Central Analysis Site to identify individual Centres or patients.
Every effort was made to ensure data completeness and correctness. As in ANDIAB, specific ‘Validation Reports’ were generated for each Centre requesting missing data and correction of questionable or potentially invalid data [See Appendix 2 for data definitions & validation rules].
Specific items that were altered if not done so by sites were:
- ‘Management Method’ not Insulin, but ‘Insulin Since’ not null - (Removed Insulin Since);
- Not ‘Current Smoker’ but ‘Tried to Stop Smoking’ Yes - (Tried to Stop Smoking made Null);
- ‘Forgets Medications’ but ‘Times per week’ blank – (Forgets Medications made No but counted/interpreted as likely means less often than once per week).
- Process assessment:
- Outcome measurements such as:
In addition, since most of the Data Fields collected in 2005 and 2010 were again collected in 2012, in part to ensure the ability for some comparison, sites that participated then have data from that initiative as well as their 2010 & 2012 data included in their Individual Site Report. There are three three-year comparative reports, covering the three ANDIAB2 collections of 2005, 2010 and 2012:
- A 2005, 2010 and 2012 Demographic Data Report;
- A 2005, 2010 and 2012 Missing Data Analysis Report;
- A 2005, 2010 and 2012 Frequency Counts Report.
The pooled data analysis in this Final Report provides a ‘snapshot’ of the status of patient practices and Diabetes Centre services – as detailed below.
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3.1 Project MilestonesThe major Project Milestones are summarised in Figure 1[a] where superscript numbers reference
Figure 1[b] Project components.
Figure 1[a] – ANDIAB2 Project Milestones*
- Revise ANDIAB2 Dataset;
- Initial call for expressions of interest, December 2011-January 20121;
- Formal invitations received, collation of site acceptances January 2012 - February 20122;
- Allocation of site codes, March 20123, 4;
- Generation and distribution of Data Collection Forms, April 20125, 6;
- Data collection, May-June 20127, 8;
- Study assessment: Post Data Collection Questionnaire9, 12;
- Data received from ANDIAB Software sites June 20128;
- Data entry and validation July 2012 – September 2012;
- Missing Data reports forwarded to sites July 2012 – September 201210, 11;
- Integration of returned missing data September 201212, 13;
- Final Data Analysis October 2012;
- Final Site/Doctor Data Analysis Reports forwarded to sites November 2012;
- Final Pooled Data Report December 2012;
Australian National Diabetes Information Audit & Benchmarking
National Clinical Data Collection Project
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3.2 Participants SitesThe following NADC member Diabetes Centres participated in ANDIAB2 2012 [Table 1].
|Table 1 Participating Centres||State|
|Alice Spring Hospital Diabetes Centre||NT|
|Ballina Community Health-Ballina Byron Diabetes Centre||NSW|
|Bankstown-Lidcombe Hospital - Diabetes Centre||NSW|
|Barwon Health - Community Diabetes Service||VIC|
|Barwon Health - Geelong Hospital - Diabetes Centre||VIC|
|Blacktown Hospital - Diabetes Centre||NSW|
|Cairns Base Hospital - Diabetes Centre||QLD|
|Ipswich Diabetes Service||QLD|
|Logan Beaudesert Health Service District||QLD|
|Macarthur Diabetes Service||NSW|
|Mater Hospital - Diabetes Centre||QLD|
|Mt Druitt Hospital - Diabetes Centre||NSW|
|Noarlunga Health Service||SA|
|North West Diabetes Service||TAS|
|Redland Hospital Diabetes Centre||QLD|
|Rockingham Diabetes Services – Rockingham Hospital||WA|
|Royal Hobart Hospital - Diabetes Centre||TAS|
|St Vincent's Hospital-Melbourne||VIC|
|St Vincent's Hospital-Sydney||NSW|
|The Alfred - Department of Endocrinology & Diabetes||VIC|
|The Canberra Hospital - Diabetes Centre||ACT|
|Westmead Hospital - Diabetes Centre||NSW|
|Western Hospital - Footscray - Diabetes Centre||VIC|
3.3 QuestionnairesAs in ANDIAB2 2010, questionnaires were developed, distributed and replies collated and reported on the assessment of participant responses to aspects of the project. In ANDIAB2 2012, no sites provided data from established databases, with paper form collection used by all of the participants. Participating sites were asked to complete Questionnaire  in June/July/August, - [at completion of the data collection phase], to assess the project overall. Questionnaire , to assess the Individual Site Report that they receive, were forwarded with their Site Report.
[See 4.11 & Table 16 Page 17].
[See Appendix 4 for Copies of Questionnaires used in 2012].
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