Evaluation of the consumer - directed care initiative - Final Report

B.3 Consumer-directed respite care and comparison group survey responses

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Respondent characteristics

The tables below outline the characteristics of respondents to the CDRC participant survey and the NRCP comparison group survey.

Table B76: Respondent characteristics – CDRC

Age

Characteristic	CDRC	Comparison
under 50	12%	5%
50-64	43%	47%
65-74	23%	24%
75-84	18%	18%
85+	2%	2%
Blank / No response	1%	4%

Gender

Characteristic	CDRC	Comparison
Male	26%	31%
Female	74%	64%
Multiple response	0%	0%
Blank / No response	0%	5%

Pension status

Characteristic	CDRC	Comparison
I receive a full Centrelink pension	37%	40%
I received a part Centrelink pension	22%	24%
I receive another type of pension	5%	9%
I do not receive a pension	24%	18%
Multiple response	7%	2%
Blank / No response	5%	7%

Special needs group status

Characteristic	CDRC	Comparison
I am of Aboriginal and / or Torres Strait Islander origin	5%	2%
I was born in a non-English speaking country	7%	22%
I live in a rural or remote area	25%	25%
I am a Veteran, a spouse / partner of a Veteran or a widow / widower of a Veteran	5%	2%
I have no permanent accommodation, and live in temporary accommodation	0%	0%
I have no permanent or conventional accommodation	0%	0%
I was raised in an orphanage, out-of-home care or foster care	0%	0%

Do you have someone who does not live with you whom you can call on for assistance during a crisis?

Characteristic	CDRC	Comparison
Yes	71%	85%
No	29%	11%
Multiple response	0%	0%
Blank / No response	0%	4%

Age of the person cared for

Characteristic	CDRC	Comparison
under 50	1%	7%
50-64	9%	7%
65-74	24%	24%
75-84	33%	29%
85+	26%	20%
Multiple / blank	8%	13%

Gender of the person cared for

Characteristic	CDRC	Comparison
Male	49%	47%
Female	45%	40%
Multiple response	5%	9%
Blank / No response	1%	4%

Living arrangements

Characteristic	CDRC	Comparison
Lives with the person cared for	83%	84%
Does not live with the person cared for	16%	15%
Multiple response	1%	0%
Blank / No response	0%	2%

Relationship with the person care for

Characteristic	CDRC	Comparison
Spouse / partner	58%	65%
Parent	30%	25%
Grandparent	0%	0%
Sibling	1%	4%
Extended family member	0%	2%
Friend	0%	0%
Multiple response	1%	2%
Blank / No response	10%	2%

Dementia status – person cared for

Characteristic	CDRC		Comparison
Has dementia	54%		51%
Does not have dementia	45%		45%
Multiple response	0%		2%
Blank / No response	1%		2%

Disability status – person cared for

Characteristic	CDRC	Comparison
Has a disability	68%	76%
Does not have a disability	25%	22%
Multiple response	0%	0%
Blank / No response	7%	2%

Pension status - person cared for

Characteristic	CDRC	Comparison
Full Centrelink pension	46%	53%
Part Centrelink pension	24%	24%
Another type of pension	14%	5%
Does not receive a pension	10%	7%
Multiple response	3%	5%
Blank / No response	3%	5%

Pension type – person cared for

Characteristic	CDRC	Comparison
Age pension	64%	55%
Disability support pension	5%	16%
Widow pension	1%	2%
Carer Payment / Allowance	1%	4%
Private pension / superannuation	5%	4%
Multiple response	7%	11%
Blank / No response	16%	9%

Special needs group status - person cared for

Characteristic	CDRC	Comparison
Aboriginal and / or Torres Strait Islander origin	3%	2%
Born in a non-English speaking country	11%	18%
Live in a rural or remote area	23%	29%
Veteran, a spouse / partner of a Veteran or a widow / widower of a Veteran	12%	4%
No permanent accommodation, and live in temporary accommodation	0%	2%
No permanent or conventional accommodation	0%	0%
Raised in an orphanage, out-of-home care or foster care (care-leaver)	0%	0%

Table B77: Did you use any respite services before you started using Consumer Directed Respite Care?

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Response	CDRC
Yes - In home respite	76%
Yes - Out of home respite	26%
Yes - Holiday respite	18%
Yes - Residential aged care respite	18%

Table B78: Length of time receiving current respite package / respite services

Response	CDRC	Comparison
Less than 1 month	0%	5%
1 to 3 months	17%	13%
3 to 6 months	36%	13%
More than 6 months	45%	65%
Multiple response	2%	0%
Blank / No response	0%	4%

Responses to survey questions

The tables below outline the responses to each survey question for the CDRC participant group and the NRCP comparison group.

In most cases, the same question was asked in each survey, though there were some additional questions included in the CDRC participant survey only.

Table B79: Why did you decide to participate in Consumer Directed Respite Care?

Question / Response	CDRC
I wanted more choice of which respite service I used	35%
I wanted to have more choice of providers	15%
I wanted more control over my respite planning	34%
It was recommended to me by the Carelink Centre	52%
I was not satisfied with my previous respite care	7%

Table B80: I felt included in the process of planning my respite services

Question / Response	CDRC		Comparison
Strongly disagree	1%		4%
Disagree	2%		2%
Neither agree nor disagree	2%		4%
Agree	27%		62%
Strongly agree	66%		22%
Don’t know	0%		0%
Not applicable to me	0%		4%
Multiple response	0%		2%
Blank / No response	1%		2%

Table B81: My needs and goals were taken into account in the process of planning my respite services

Question / Response	CDRC	Comparison
Strongly disagree	2%	4%
Disagree	2%	5%
Neither agree nor disagree	2%	5%
Agree	26%	62%
Strongly agree	67%	20%
Don’t know	0%	0%
Not applicable to me	0%	2%
Multiple response	0%	0%
Blank / No response	0%	2%

Table B82: I had enough information about the types of services that I could choose

Question / Response	CDRC
Strongly disagree	2%
Disagree	2%
Neither agree nor disagree	3%
Agree	33%
Strongly agree	58%
Don’t know	1%
Not applicable to me	0%
Multiple response	1%
Blank / No response	0%

Table B83: I had enough information about the respite service providers that I could choose to receive services from

Question / Response	CDRC
Strongly disagree	2%
Disagree	7%
Neither agree nor disagree	11%
Agree	41%
Strongly agree	34%
Don’t know	2%
Not applicable to me	2%
Multiple response	0%
Blank / No response	1%

Table B84: I had enough information about the costs involved

Question / Response	CDRC
Strongly disagree	1%
Disagree	3%
Neither agree nor disagree	7%
Agree	39%
Strongly agree	41%
Don’t know	2%
Not applicable to me	5%
Multiple response	0%
Blank / No response	1%

Table B85: I had enough information about how frequently I could access respite

Question / Response	CDRC
Strongly disagree	1%
Disagree	4%
Neither agree nor disagree	4%
Agree	46%
Strongly agree	41%
Don’t know	1%
Not applicable to me	1%
Multiple response	0%
Blank / No response	1%

Table B86: The Commonwealth Respite and Carelink Centre helped me to plan and make decisions regarding the types of respite services I could choose

Question / Response	CDRC
Strongly disagree	2%
Disagree	2%
Neither agree nor disagree	3%
Agree	33%
Strongly agree	55%
Don’t know	1%
Not applicable to me	2%
Multiple response	0%
Blank / No response	1%

Table B87: I was satisfied with the amount of help I received from the Commonwealth Respite and Carelink Centre

Question / Response	CDRC
Strongly disagree	1%
Disagree	0%
Neither agree nor disagree	4%
Agree	29%
Strongly agree	62%
Don’t know	0%
Not applicable to me	2%
Multiple response	0%
Blank / No response	1%

Table B88: I was satisfied with the range of respite services that I could choose

Question / Response	CDRC	Comparison
Strongly disagree	2%	5%
Disagree	8%	9%
Neither agree nor disagree	7%	2%
Agree	33%	62%
Strongly agree	46%	16%
Don’t know	2%	2%
Not applicable to me	2%	2%
Multiple response	0%	0%
Blank / No response	1%	2%

Table B89: I am satisfied with the service providers that deliver respite services

Question / Response	CDRC	Comparison
Strongly disagree	1%	2%
Disagree	7%	4%
Neither agree nor disagree	4%	7%
Agree	35%	49%
Strongly agree	51%	29%
Don’t know	0%	2%
Not applicable to me	1%	2%
Multiple response	0%	4%
Blank / No response	1%	2%

Table B90: I receive the respite services that I wanted to receive

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Question / Response	CDRC	Comparison
Strongly disagree	2%	5%
Disagree	4%	13%
Neither agree nor disagree	5%	4%
Agree	39%	45%
Strongly agree	47%	25%
Don’t know	0%	2%
Not applicable to me	0%	2%
Multiple response	0%	2%
Blank / No response	2%	2%

Table B91: Overall, I felt confident making decisions about my respite services

Question / Response	CDRC
Strongly disagree	1%
Disagree	2%
Neither agree nor disagree	5%
Agree	43%
Strongly agree	47%
Don’t know	0%
Not applicable to me	0%
Multiple response	0%
Blank / No response	1%

Table B92: Overall, I am satisfied with the quality of respite services I receive

Question / Response	CDRC	Comparison
Strongly disagree	1%	4%
Disagree	2%	4%
Neither agree nor disagree	2%	9%
Agree	37%	45%
Strongly agree	55%	31%
Don’t know	1%	0%
Not applicable to me	0%	2%
Multiple response	0%	4%
Blank / No response	1%	2%

Table B93: I am satisfied with the way my respite care is planned and coordinated

Question / Response	CDRC	Comparison
Strongly disagree	2%	4%
Disagree	3%	7%
Neither agree nor disagree	1%	5%
Agree	40%	53%
Strongly agree	51%	27%
Don’t know	1%	0%
Not applicable to me	0%	2%
Multiple response	0%	0%
Blank / No response	1%	2%

Table B94: I would feel comfortable asking to change the type of services that I receive if I needed to, or asking for a new type of service

Question / Response	CDRC	Comparison
Strongly disagree	1%	4%
Disagree	2%	5%
Neither agree nor disagree	0%	5%
Agree	41%	56%
Strongly agree	51%	24%
Don’t know	0%	2%
Not applicable to me	1%	2%
Multiple response	1%	0%
Blank / No response	2%	2%

Table B95: I would feel comfortable asking to change the frequency of services that I receive if I needed to

Question / Response	CDRC	Comparison
Strongly disagree	1%	4%
Disagree	3%	9%
Neither agree nor disagree	1%	5%
Agree	37%	58%
Strongly agree	53%	9%
Don’t know	1%	9%
Not applicable to me	1%	4%
Multiple response	0%	0%
Blank / No response	2%	2%

Table B96: I feel like I have control over my respite plan, and the respite services I receive

Question / Response	CDRC	Comparison
Strongly disagree	1%	5%
Disagree	3%	15%
Neither agree nor disagree	8%	7%
Agree	37%	55%
Strongly agree	48%	13%
Don’t know	0%	0%
Not applicable to me	1%	2%
Multiple response	0%	0%
Blank / No response	2%	4%

Table B97: The respite services I receive help me to do or achieve the things I want to do or achieve

Question / Response	CDRC	Comparison
Strongly disagree	1%	4%
Disagree	1%	7%
Neither agree nor disagree	4%	4%
Agree	43%	58%
Strongly agree	48%	20%
Don’t know	0%	4%
Not applicable to me	0%	2%
Multiple response	0%	0%
Blank / No response	2%	2%

Table B98: Being involved in Consumer Directed Respite Care has helped me to do or achieve the things I want to do or achieve

Question / Response	CDRC
Strongly disagree	1%
Disagree	3%
Neither agree nor disagree	4%
Agree	36%
Strongly agree	54%
Don’t know	0%
Not applicable to me	0%
Multiple response	0%
Blank / No response	1%

Table B99: Compared to six months ago, how satisfied were you with your ability to achieve the things you want to achieve?

Question / Response	CDRC	Comparison
Not satisfied	3%	13%
Somewhat less satisfied	3%	15%
No different	14%	35%
Somewhat more satisfied	23%	20%
Much more satisfied	53%	13%
Don’t know	2%	4%
Multiple response	0%	0%
Blank / No response	1%	2%

Table B100: Compared to six months ago, how satisfied were you with the level of control that you feel you have over your use of respite?

Question / Response	CDRC	Comparison
Not satisfied	3%	7%
Somewhat less satisfied	0%	7%
No different	15%	40%
Somewhat more satisfied	23%	24%
Much more satisfied	54%	18%
Don’t know	1%	2%
Multiple response	0%	0%
Blank / No response	3%	2%

Table B101: Compared to six months ago, how satisfied were you with your ability to participate in social and community activities?

Question / Response	CDRC	Comparison
Not satisfied	3%	16%
Somewhat less satisfied	8%	15%
No different	20%	36%
Somewhat more satisfied	28%	25%
Much more satisfied	35%	5%
Don’t know	4%	2%
Multiple response	0%	0%
Blank / No response	2%	0%

Table B102: Compared to six months ago, how satisfied were you with the extent to which you were able to visit your family and friends?

Question / Response	CDRC	Comparison
Not satisfied	3%	3%
Somewhat less satisfied	2%	2%
No different	33%	33%
Somewhat more satisfied	28%	28%
Much more satisfied	27%	27%
Don’t know	2%	2%
Multiple response	0%	0%
Blank / No response	4%	4%

Table B103: Compared to six months ago, how satisfied were you with the quality of your home life and close relationships?

Question / Response	CDRC	Comparison
Not satisfied	5%	11%
Somewhat less satisfied	5%	16%
No different	27%	42%
Somewhat more satisfied	32%	20%
Much more satisfied	26%	9%
Don’t know	0%	2%
Multiple response	0%	0%
Blank / No response	4%	0%

Table B104: Compared to six months ago, how satisfied were you with the extent to which you can complete everyday tasks around your home?

Question / Response	CDRC	Comparison
Not satisfied	1%	7%
Somewhat less satisfied	5%	16%
No different	37%	45%
Somewhat more satisfied	29%	24%
Much more satisfied	24%	7%
Don’t know	0%	0%
Multiple response	0%	0%
Blank / No response	3%	0%

Table B105: Compared to six months ago, how satisfied were you with your general health and wellbeing?

Question / Response	CDRC	Comparison
Not satisfied	3%	11%
Somewhat less satisfied	8%	36%
No different	36%	36%
Somewhat more satisfied	30%	11%
Much more satisfied	20%	5%
Don’t know	0%	0%
Multiple response	0%	0%
Blank / No response	3%	0%

Table B106: Compared to six months ago, how satisfied were you with your level of independence?

Question / Response	CDRC	Comparison
Not satisfied	3%	13%
Somewhat less satisfied	5%	18%
No different	29%	45%
Somewhat more satisfied	36%	15%
Much more satisfied	22%	9%
Don’t know	0%	0%
Multiple response	0%	0%
Blank / No response	4%	0%

Table B107: Have you, or the person you care for, experienced a major change in your life circumstances in the last six months?

Question / Response	CDRC	Comparison
Yes	45%	49%
No	52%	49%
Multiple response	0%	0%
Blank / No response	3%	2%

Top of pageThe following items relate to aspects of a person’s quality of life, and were from the ICECAP-O wellbeing measurement tool.

Table B108: ICECAP-O wellbeing measurement tool – median scores

	CDRC	Comparison
Median score	0.76	0.71

A score of 1 is the maximum wellbeing score, and a score of 0 the minimum
Note that respondents who did not complete all five items have been excluded.

Table B109: ICECAP-O wellbeing measurement tool – responses to 5 life domains

Attachment

Life domain	CDRC	Comparison
I can have all of the love and friendship that I want	28%	31%
I can have a lot of the love and friendship that I want	32%	29%
I can have a little of the love and friendship that I want	29%	29%
I cannot have any of the love and friendship that I want	3%	5%
Multiple response	1%	0%
Blank / No response

Security

Life domain	CDRC	Comparison
I can think about the future without any concern	10%	11%
I can think about the future with only a little concern	23%	16%
I can only think about the future with some concern	42%	44%
I can only think about the future with a lot of concern	21%	24%
Multiple response	1%	0%
Blank / No response	3%	5%

Role

Life domain	CDRC	Comparison
I am able to do all the things that make me feel valued	15%	11%
I am able to do many of the things that make me feel valued	50%	47%
I am able to do a few of the things that make me feel valued	29%	29%
I am unable to do any of the things that make me feel valued	2%	7%
Multiple response	0%	0%
Blank / No response	3%	5%

Enjoyment

Life domain	CDRC	Comparison
I can have all of the enjoyment and pleasure that I want	9%	2%
I can have a lot of the enjoyment and pleasure that I want	30%	33%
I can have a little of the enjoyment and pleasure that I want	57%	49%
I cannot have any of the enjoyment and pleasure that I want	3%	11%
Multiple response	1%	0%
Blank / No response	0%	5%

Control

Life domain	CDRC	Comparison
I am able to be completely independent	18%	18%
I am able to be independent in many things	38%	40%
I am able to be independent in a few things	37%	24%
I am unable to be at all independent	4%	11%
Multiple response	0%	0%
Blank / No response	2%	7%

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