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Indigenous Chronic Disease Package Monitoring and Evaluation Framework - Volume 3

Appendix E - Data Sources

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Defining data sources terminology in the Monitoring and Evaluation Framework

Terminology	Descriptor
Aboriginal and Torres Strait Islander Health Performance Framework (HPF)	Published biennially by the AIHW incorporating a wide range of chronic disease performance indicators collected through various national and other databases/surveys (more information on HPF data sources and technical notes are included in this Appendix)
AGPN	As a key stakeholder in a number of ICDP measures, the AGPN will participate in a number of monitoring and evaluation activities
APCC	Program data from over 500 participating medical practices including clinical and service enhancement measurements
BEACH	Collects information about clinical activities in general practice in Australia. The BEACH database includes over 1,200,000 GP-patient encounter records. Annually BEACH analyses data from 100 consecutive consultations from each of the randomly selected sample of 1,000 GPs
CDSM register	Number of patients enrolled at the practice level in the Chronic Disease Management Program
Clinical data systems and/or quality improvement systems	Systematic collection and reporting of data relating to clinical performance and clinical outcomes
Community members consultation	Face to face interviews or focus groups with members of local Indigenous communities to assess knowledge, awareness and impact of ICDP measures on local individuals, families, and communities
Community-level survey	Quantitative survey tool used in A1 evaluation to assess impact of health promotion and social marketing campaign activity, to be determined when measure evaluations are developed
Consultation with ...	Face to face or telephone interviews, focus groups, email or other direct interaction with stakeholders (key stakeholders are identified in each measure)
GPET	Data regarding postgraduate vocational training activity including the number of services requesting a general practice registrar length of time before these vacancies are filled and the number of placements which are completed
Health workforce survey	One or more surveys of the ICDP workforce to be developed by the evaluator to assess impact of ICDP measures on health care professionals
Healthy for Life (H4L)	Program data set within OATSIH, including data from participating Indigenous and other health services within a web-based reporting system
MBS	Data held by Medicare Australia regarding uptake of clinical services provided under the Medical Benefits Schedule
MSOAP	Program data held by DoHA including the number of patients per location and in total, number of visits and the types of participating organisations
National Aboriginal and Torres Strait Islander Health Survey (NATSIHS)	A survey of a representative sample of Aboriginal and Torres Strait Islander Australians, conducted at six-yearly intervals, which covers a range of health and well-being issues
NT AHKPI	Northern Territory has developed a set of core indicators based on a range of clinical and social measurements in participating Indigenous community health services
OATSIH Services Reporting (OSR)	OATSIH service reporting tool for annual reporting by ACCHSs
Organisational survey	One or more surveys to be developed by the evaluator for Indigenous health services and general practices funded under the ICDP to assess the impact of ICDP measures at a service level
PBS	Data held by DoHA regarding utilisation of pharmaceuticals subsidised under the Pharmaceutical Benefits Scheme
PIP/PIPIHI	Data held by DoHA regarding the Practice Incentives Program, including registrations and uptake of the ICDP PIP Indigenous Health Incentive and process measures
Program documentation	The range of qualitative and quantitative information held by program managers within DoHA including information regarding design and implementation of measures, process data, and some outcome measures
QAIHC	QAIHC has developed a set of core indicators based on a range of clinical and social measurements in participating Indigenous community health services
USOAP	Program reporting data held by DoHA including the number and type of Program occasions of care, extent of Program participation by specialists and allied health professionals, and reported success factors in the implementation of the Program

Sources of data utilised in the ICDP Monitoring and Evaluation Frameworks (Package-wide and individual measures)

Data type/category	Data source	ICDP	A1	A2	A3	B1	B3a	B3b	B4	B5a	B5b	C1	C2	C3	C4	C5
National Performance Indicators as Reported in the HPF Publication		x	x		x		x	x							x
Administrative/system data sets	PIP	x				x	x	x
	PIP IHI	x				x	x
	MBS	x					x	x
	PBS	x				x
	APCC	x					x							x
	NT AH KPI	x					x
	Healthy for Life	x					x
	QAIHC	x					x
	BEACH	x
	OSR		x										x		x
	USOAP	x								x
	MSOAP	x									x
	NATSIHS	x
	GPET											x
ICDP Program documentation		x	x	x	x	x	x	x	x	x	x	x	x	x	x	x
ICDP Program-specific evaluations		x	x		x										x
Surveys for ICDP evaluation	ICDP health workforce	x	x	x			x	x	x	x		x			x	x
	Organisations funded by the ICDP	x	x									x	x
	Website users (C5)															x
	Longitudinal survey of health promotion program participants			x
In-depth stakeholder consultations conducted for the ICDP evaluation (one-on-one interviews and focus groups; stakeholders described in each framework)	ICDP stakeholders at national, State/Territory, regional and local level	x	x	x	x	x	x	x	x	x	x	x	x	x	x	x
Surveys and statistics produced by associated providers (e.g. RTOs, Quitline)			x			x	x		x							x
Clinical data systems and/or quality improvement systems		x				x	x
Other Communications audit															x

Aboriginal and Torres Strait Islander Health Performance Framework data sources

Following the advice of Department of Health and Ageing, Urbis understands that the Australian Institute of Health and Welfare’s Aboriginal and Torres Strait Islander Health Performance Framework (HPF) is the agreed standard for monitoring changes in the health of Indigenous Australians. The HPF consists of 70 measures across three tiers - health status and outcomes, determinants of health and health systems performance.

Of the HPF’s 70 performance indicators. Urbis has identified 24 which are of particular relevance to the monitoring and evaluation of the ICDP. See Appendix G for Technical Notes on these data sources.

List of data sources utilised in HPF indicators as referenced in ICDP Monitoring and Evaluation Framework

Number	Name	Data Sources
HPF #1.02	Top reasons for hospitalisation	AIHW National Hospital Morbidity Database
HPF #1.05	Circulatory disease	National Aboriginal and Torres Strait Islander Health Survey (NATSIHS) Bettering the Evaluation and Care of Health Survey (BEACH) AIHW National Hospital Morbidity database
HPF #1.07	High blood pressure	National Aboriginal and Torres Strait Islander Health Survey (NATSIHS) Bettering the Evaluation and Care of Health Survey (BEACH) AIHW National Hospital Morbidity database
HPF #1.08	Diabetes	National Aboriginal and Torres Strait Islander Health Survey (NATSIHS) Bettering the Evaluation and Care of Health Survey (BEACH) AIHW National Hospital Morbidity database
HPF #1.09	End stage renal disease	Australia and New Zealand Dialysis and Transplant Registry (ANZDATA) AIHW National Hospital Morbidity Database AIHW National Mortality Database
HPF #1.15	Perceived health status	National Aboriginal and Torres Strait Islander Health Survey (NATSIHS) National Aboriginal and Torres Strait Islander Social Survey (NATSISS)
HPF #1.16	Social and emotional wellbeing	National Aboriginal and Torres Strait Islander Health Survey (NATSIHS) National Aboriginal and Torres Strait Islander Social Survey (NATSISS) Western Australian Aboriginal Child Health Survey Bettering the Evaluation and Care of Health Survey (BEACH) AIHW National Hospital Morbidity database AIHW National Mortality Database AIHW National Community Mental Health Care Database AIHW National Residential Mental Health Care Database
HPF #1.17	Life expectancy at birth	2006 Census Population and Housing AIHW National Mortality Database
HPF #1.22	All causes age-standardised death	AIHW National Mortality Database
HPF #1.23	Leading causes of mortality	AIHW National Mortality Database
HPF #2.03	Environmental tobacco smoke	National Aboriginal and Torres Strait Islander Health Survey (NATSIHS)
HPF #2.18	Tobacco use	2004-05 National Aboriginal and Torres Strait Islander Health Survey (NATSIHS) 2004 National Drug Strategy Household Survey
HPF #2.19	Tobacco smoking during pregnancy	AIHW National Perinatal Data Collection
HPF #2.22	Level of physical activity	National Aboriginal and Torres Strait Islander Health Survey (NATSIHS)
HPF #2.23	Dietary behaviour	National Aboriginal and Torres Strait Islander Health Survey (NATSIHS)
HPF #2.26	Prevalence of overweight and obesity	2004-05 National Aboriginal and Torres Strait Islander Health Survey (NATSIHS)
HPF #3.03	Early detection and early treatment	Medicare Database AIHW BreastScreen Australia Database National Bowel Cancer Screening Register 2004-05 National Aboriginal and Torres Strait Islander Health Survey (NATSIHS) AIHW National Mortality Database Service Activity Reporting (SAR)
HPF #3.04	Chronic disease management	Service Activity Reporting (SAR) Healthy for Life data collections Divisions of General Practice National Performance Indicators
HPF# 3.05	Differential access to key hospital procedures	AIHW National Hospital Morbidity Database
HPF #3.06	Ambulatory care sensitive hospital Admissions	AIHW National Hospital Morbidity Database
HPF #3.10	Aboriginal and Torres Strait Islander people in the health workforce	2006 ABS Census of Population and Housing
HPF #3.12	Access to services by types of service compared with need	National Aboriginal and Torres Strait Islander Health Survey (NATSIHS) National Aboriginal and Torres Strait Islander Social Survey (NATSISS) Community Housing and Infrastructure Needs Survey (CHINS) 2006 ABS Census of Population and Housing AIHW National Hospital Morbidity Database General Practitioner data Medicare Database AIHW Labour Force surveys Service Activity Report (SAR) Drug and Alcohol Service Reporting (DASR) Health expenditure data Palliative care data
HPF #3.18	Aboriginal and Torres Strait Islander peoples training for health-related disciplines	Australian Government Department of Education, Science and Training’s Higher Education Student Statistics Collection National Centre for Vocational education Research Collection
HPF #3.20	Recruitment and retention of clinical management staff (including GPs)	Service Activity Reporting (SAR) Rural Workforce Agency National Minimum Data GP Data AIHW Labour Force surveys

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